FREQUENTLY
ASKED QUESTIONS: |
*The
following questions and answers have been put together to ‘assist’
CASG members. It does, in no way, replace advice offered by medical
professionals or other specialist professionals. Answers have been
sourced from various websites and from local contacts. CASG in no
way endorses any one particular agency or service over another.
Each family must take into consideration the individual needs of
their own child.*
|
| Please
select a topic from below to read the responses OR
download the .pdf
file |
| |
|
1. “What
services are available in Cairns for those with ASD?” |
| Section
1 - Pre
School Age |
| Section
2 - School Age |
| Section
3 - Post School Age |
| Section
4 - Carers, Parents and Grandparents |
| |
| 2.
“Is there a crisis helpline that I can call in
times of need?” |
| |
| 3.
“What help is there for my child under Medicare?” |
| |
4.
“What does the 'Helping
Children with Autism Package'
funded
by FaHCSIA provide and how do I access it |
|
........................................................................................................................
1.1 “What services are available in Cairns for those with ASD?”
........................................................................................................................
|
|
|
The
Autism Association in every state and territory is funded to provide
an Autism Advisor Program, in both urban and regional areas. Autism
Queensland provides the Autism Advisor Service in Queensland. Autism
Advisors are funded to assist families and carers of children who
are diagnosed with an ASD by providing information about appropriate
early intervention services. The Advisors provide a link between
the clinical diagnosis and access to early intervention programs
and support services. They also assist eligible families to access
the Australian Government funding for early intervention services
and grants to support families from rural and remote areas. |
To access the Autism Advisor Program, the child must be: |
• 0
– 5 years
• In some situations, children who are 6 can be deemed
eligible, but only under special circumstances – parents
will need to contact the Autism Advisor Program
to discuss this
• Diagnosed, by a pediatrician, psychiatrist or multi-disciplinary
assessment team, with one of the following:
o
Autism
o Autistic disorder
o Asperger syndrome
o Rett syndrome
o Childhood disintegrative disorder
o Pervasive developmental disorder
– not otherwise specified (PDD-NOS)
• An
Australian resident
|
To
verify the child’s eligibility for accessing the Autism Advisor
Program and consequently, the Early Intervention funding, the Advisors
need to be provided with: |
• A
copy of the child’s birth certificate
• A copy of the letter of diagnosis / diagnostic form /
diagnostic statement
• The child’s Centrelink number (on their Centrelink
Health Care Card)
• A copy of a rates notice or utilities bill to confirm
the residential address
• A copy of any parenting plan or court order
• A Client Consent
Form signed by the parent / carer
|
| Please do not
hesitate to contact us for further information. |
| Email: aap@autismqld.com.au
Phone: (07) 3273 0000 |
| Website: http://www.autismqld.com.au/services/autism-advisor-program.html |
|
PlayConnect
Playgroups are designed to help families with children
with Autism Spectrum Disorders (ASD) to connect with other families.
Families that have a child aged from 0-6 years with ASD or ASD like
symptoms are welcome to join a PlayConnect Playgroup. Children do
not need an ASD diagnosis to join. Siblings aged 0 to 6 years old
are also welcome to attend. PlayConnect Playgroups meet weekly for
two hours. During playgroup sessions, caregivers and children participate
in a variety of play activities suited to the needs of children
with ASD.
PlayConnect is not ‘therapy based’ however the PlayConnect
Worker can provide families with information about strategies for
play and specialist services in their local area. Playconnect in
Cairns is currently facilitated by Brigitte Strivens and held at
St Margaret’s Anglican Church, Aumuller Street, Cairns each
Thursday morning @ 9.30am – 11.30am.
Website: http://www.playgroupaustralia.com.au |
|
Early
Days’ is a national program of workshops for parents
and carers who are in the early days of assessment and diagnosis
of their child. The workshops provide support that will assist families
to effectively manage the pressures they face during the early diagnosis
stage. Autism Queensland is the ‘First Provider’ of
these workshops in Queensland. These are conducted across Australia
in small groups to maximise participant interaction. Where participation
is not possible due to rural isolation or time constraints other
options, such as on-line learning, are being offered. Early Days
has been developed to complement other available services in the
ASD field and provide a resource for families who are just coming
to terms with their child’s ASD or who are waiting for early
intervention services. Families and carers are able to receive information
and book their attendance to the Early Days workshops by either
calling the free call 1800 334 155 national number or via the Early
Days website at:
www.earlydays.net.au. |
|
ARC
Disability Services’ aim is ‘to support
people who have disabilities and their families, through a range
of accommodating, responsive and creative supports.’ This
service aims to support families living in the Far North Region
which include a person who has an intellectual and/or physical disability
and/or sensory disability, acquired prior to age 18, which results
in a need for ongoing, lifelong support, until age becomes the person's
primary disability. Services include: respite house, flexi respite,
family support program, post school services, and the popular ARC
Toy Library. ARC can be found at 92 Little Street, Manunda Phone:
(07) 4046 3600 Email: info@arcinc.org.au
Website:
www.arcinc.org.au |
|
Autism
Queensland
has been providing targeted Early Intervention programs for over
25 years. It now provides a range of services to support young children
with ASD and their families. These services include therapy and
education input, advisory support, information, training and family
support. Autism Queensland operates an Early Intervention Service
based in their centre at 15–17 Marr Street, Edmonton. It provides
specialist early intervention to children under 6 years of age,
with a diagnosis of ASD, and their families in Cairns and the surrounding
region of Far North Queensland. The EarlyAQtion service is made
possible thanks to the financial support of Disability Services
Qld (DSQ). If you would you like us to contact you in relation to
this service and your child please follow
this link or you may like
to phone our Cairns team on (07) 4045 4600. Website: http://www.autismqld.com.au/ |
- Disability
Services Queensland:
|
Disability
Services Queensland’s, Family and Early Childhood
Services programs support families with a child aged up to six years
who has, or is at risk of, a significant developmental delay. With
the support and information provided through the service, families
are able to strengthen their knowledge, skills and resources, giving
them a better opportunity to help promote their child’s developmental
learning and inclusion in the local community. Programs may include:
assessments and strategies to promote the child’s learning
and skills development in areas including communication, play, gross
and fine movements and independence skills; support with planning
for current and future needs, information sessions and training.
For further advice or assistance regarding the Family and Early
Childhood Services please contact
your nearest DSQ Regional Office.
Freecall 1800 177 120. Website: http://www.disability.qld.gov.au/
|
- CDU
– Child Development Unit:
|
Queensland
Health aims to provide a range of services aimed at achieving good
health and well-being for all Queenslanders. The
Child Development Unit offers specialist support and
access to speech therapy, occupational therapy and workshop sessions
on a range of issues related to disability. Assistance is available
via a referral system, from medical professionals. The Child Development
Unit can be found at: 277 Mulgrave Rd, Cairns. Phone (07) 4052 9323. |
|
|
Occupational
Therapy focussing on the assessment and management of children who
have difficulties with any area of their daily living, including:
Learning, Handwriting, Play, Social Skills, Motor Skills, Self care
skills including toileting, behaviour and General development.
Children can be seen in a clinic setting, within their school or
kindy/day care or at home
Contact: Jolene Kettenberg, BApp Sc (OccThy) 0415 358 809 or email
kattenbergs@bigpond.com |
|
........................................................................................................................
1. 2 “What services are available in Cairns for those with
ASD?”
........................................................................................................................
|
SCHOOL
AGE: |
|
Autism
Queensland's Outreach Services team works with the child's
school support team to identify strategies to improve educational
outcomes. The Outreach Services team is a multidisciplinary team
consisting of teachers, speech pathologists and occupational therapists.
Consultants are able to provide visits to a child's educational
setting. For visits in other regional areas, please view the Itinerary
for 2010
to find out when consultants will be in your
region.
To download the visit request form please click
here Website: http://www.autismqld.com.au/ |
|
| The Department
of Education, Employment and Workplace Relations (DEEWR) is delivering
two school aged initiatives, through its’ Positive
Partnerships program: |
•
Professional development for teachers and other school staff to
support school students with ASD to achieve better educational
outcomes
• Workshops for parents and carers of school students with
ASD (this information will also be available on-line)
|
| More information can be obtained by visiting http://www.autismtraining.com.au |
|
|
ARC
Disability Services’ aim is ‘to support
people who have disabilities and their families, through a range
of accommodating, responsive and creative supports.’ This
service aims to support families living in the Far North Region
which include a person who has an intellectual and/or physical disability
and/or sensory disability, acquired prior to age 18, which results
in a need for ongoing, lifelong support, until age becomes the person's
primary disability. Services include: respite house, flexi respite,
family support program, post school services, and the popular ARC
Toy Library. ARC can be found at 92 Little Street, Manunda. Phone:
(07) 4046 3600 Email: info@arcinc.org.au Website:
www.arcinc.org.au
|
|
The
role of the Disability Services Support
Unit (DSSU) is to enhance and facilitate inclusive education
practices inclusive
education practices.
This work involves supporting specialists specialists
who support students with disabilities students
with disabilities so that these students
experience quality participation and enhanced learning opportunities
to achieve the best possible educational outcomes. DSSU is committed
to enhancing inclusive education practices by: |
• Building
the capacity of districts and schools to support specialists who
work with students with disabilities.
• Promoting innovations in learning through best practice
and research.
• Developing alliances and partnerships between Education
Queensland (EQ) staff and other government and community
agencies.
• Engaging in processes to develop and support EQ and other
agency initiatives for inclusive practices.
|
Individual
State Schools within the Cairns District are able to provide and
request support services for those with disabilities. However, Cairns
Coastal District Office is responsible for the overall management
of disability services provided throughout Cairns State Schools.
They can be contacted on: (07 4046 5222). Education Qld’s
website can be found at:
http://education.qld.gov.au/studentservices/learning/index.html
|
- Catholic
Education Services:
|
Parents of
children with disabilities are asked to give Catholic
education schools between six and twelve months notice
of enrolment (in some cases two years in advance) to facilitate
transition into school or transition to Secondary school. Catholic
education teachers are assisted by the Learning Support Teacher
at each school. They help to coordinate special programs for students
with disabilities and facilitate inclusive learning practices
throughout the school. Advisory Visiting Teachers work as consultants
to schools across the Diocese. They are involved in identifying
and meeting the educational needs of students and play a key role
in facilitating the delivery of quality education to students
with disabilities who have been ascertained as requiring specialist
educational support. The AVT based at Catholic Education Services
provides support to teachers and parents of ascertained students
in the categories of Intellectual Impairment and Autistic Spectrum
Disorder across the Diocese.
Catholic Education Services can be found at:130 Lake St Cairns
Ph (07) 4050 9700
Email: office@cns.catholic.edu.au
|
|
| Guidance
officers (GOs) provide guidance, counselling
and support services to students who are enrolled at an Education
Qld school and who: |
•
Require assistance resolving personal, social or emotional problems
that are having a major impact on their learning
• Are experiencing learning difficulties
• Require advice in relation to study skills, subject selection
and career planning.
|
For information
visit the website at: http://education.qld.gov.au/studentservices/protection/supportive/guidance.html
|
- Head
of Special Education Services (HOSES):
|
Special
education programs of a certain size require a Head
of Special Education Services (HOSES) to administer
the program. If the special education program at your child's school
has a HOSES, they will be a key person in your child's education.
The HOSES is a teacher whose work includes: |
•
taking a central role in the educational team in curriculum planning
for the student
• teaching students with disabilities
• monitoring the progress, performance and behaviour of students
with disabilities
• giving advice and guidance to teachers and support staff
• directing and supervising the staff of the specialised program.
|
| Special education
programs support students with disabilities in state schools, and
assist students and teachers in the development of their educational
programs. Special education programs can be site-based or across sites.
For example, a special education program may span the local primary
and secondary schools, or a cluster special education program may
support a number of students across a number of schools. (*For
Catholic Schools please see information under ‘Catholic Education
Services’ as some of their roles may be slightly different) |
|
- Advisory
Visiting Teachers:
|
Advisory
Visiting Teachers (AVTs) are teachers with specialist
knowledge and skills, who support the educational programs of students
with disabilities to facilitate quality educational outcomes. AVTs
play a key role in the delivery of quality education to students
with disabilities whose specialist educational support needs have
previously been ascertained levels 1-6, and students who have been
verified or identified as requiring educational adjustments through
the new Education Adjustment Profile (EAP), in the areas of: |
•
autistic spectrum disorder
• hearing impairment
• intellectual impairment
• physical impairment
• speech-language impairment
• vision impairment
|
| For further information
visit: http://education.qld.gov.au/studentservices/learning/disability/specialists/avt/ |
| (*For
Catholic Schools please see information under ‘Catholic Education
Services’ as some of their roles may be slightly different) |
|
The
Qld Police Citizens Youth Welfare Association
is a welfare organization and works in conjunction with the Qld
Police Service. Sgt. Scott Pottle is currently managing the Cairns
PCYC. He has 17 years service in the Qld Police. The Cairns PCYC
is one of 46 branches of the Queensland Police-Citizens Youth Welfare
Association ( http://www.pcyc.org.au/
) |
The
facility is housed in a 1.5 million dollar building at Edge Hill.
The Cairns PCYC now provides many activities for persons of all
ages. Through a local initiative of the Cairns Autism Support Group
(CASG), the PCYC now runs a number of youth groups aimed at assisting
school aged children and adults with ASD. For further information
contact PCYC Cairns who can be found at: 91 McNamara Street, Manunda.
Phone: (07) 4053 1532. Website: http://www.cairnspcyc.org/
|
- Child
and Youth Mental Health:
|
Queensland
Health aims to provide a range of services aimed at achieving good
health and well-being for all Queenslanders. The unit of Child
and Youth Mental Health offers specialist support and
access to help regarding mental health issues. Assistance is available
via a referral system, from medical professionals. Child and Youth
Mental Health can be found at: 165 Sheridan Street, Cairns. Phone
(07) 4050 3100.
|
- Cairns
Youth Mentoring Scheme:
|
To
provide an ongoing mentoring program for young people between the
ages of 12-21, who perceive they have a need related to personal
issues, education, work or achievement. Our objective is to provide
mentoring services and activities to improve the level of engagement
of young people with family, education, training, the workplace
and the community. Our intended program outcomes are increased levels
of: |
•
Self esteem and resilience
• Opportunities for participation in work, education, training
and community life
• Connection with family and peers
• Engagement with the community
• Skills in areas such as leadership and communication
|
Cairns Youth
Mentoring Scheme run out of the Flexible Learning Centre,
Clarke Street, Manunda Email: info@cairnsyouthmentoring.org
|
| Phone: (07) 4041
5844 or Mobile: 0438 413 949 Website: http://www.cairnsyouthmentoring.org/index.html |
|
|
Occupational
Therapy focussing on the assessment and management of children who
have difficulties with any area of their daily living, including:
Learning, Handwriting, Play, Social Skills, Motor Skills, Self care
skills including toileting, behaviour and General development.
Children can be seen in a clinic setting, within their school or
kindy/day care or at home
Contact: Jolene Kettenberg, BApp Sc (OccThy) 0415 358 809 or email
kattenbergs@bigpond.com |
|
........................................................................................................................
1. 3 “What services are available in Cairns for those with
ASD?”
........................................................................................................................
|
POST
SCHOOL AGE: |
|
- Direct
Employment Services:
|
Direct
Employment Services (DES) is a specialist not-for-profit
organization funded by the Australian Government to provide employment
services to people with a disability and their employers. DES provides
assistance to people with a disability to gain and retain employment.
DES has been in operation since 1992. To access DES you must: |
•
Have a disability
• Show a commitment to finding and keeping a job
• Live between Gordonvale and Mossman
• Be of working age
• Have a recent Job Capacity Assessment (JCA) and/or referral
from Centrelink (Government eligibility criteria apply)
|
DES Consultants
can: assist you to learn your job and facilitate the training provided
by the employer; suggest and access workplace modifications funding
for any adaptations required in the workplace; train you to travel
to and from home to work; help you learn and understand your rights
and responsibilities in the workplace; assist you to create good relationships
with your employers and co-workers; and provide you with ongoing assistance.
Direct Employment Services can be found at: 218 McLeod Street, Cairns
North. Telephone (07) 4031 4816. Website: http://www.des.org.au/
|
|
|
Worklink
Employment Support Group Inc. is a diverse organisation
that provides employment assistance, personal support and educational
programmes to people with a mental health condition and other disadvantaged
groups in the Cairns community. Worklink commenced operation in
1996. Services are free to both clients and employers and funded
by the Department of Education, Employment and Workplace Relations.
Our core business is to assist people 15 - 65 years with a psychiatric
disability/mental illness find and maintain employment. Worklink
can be found 209 Lyons Street, Cairns. Telephone (07 4031 0877)
Website: http://www.worklinkemp.org/
|
|
- Asperger
Services Australia:
|
Asperger
Services Australia provides support to parents, families,
carers, individuals, service providers and professionals.
The association's aims are to: |
•
Give mutual support to people with Asperger's Syndrome and their
carers
• Provide relevant up to date information on Asperger's Syndrome
• Encourage research into Asperger's Syndrome
• Promote awareness and engage in community education
• Campaign for improved educational services and equal opportunity
|
Services
that ASA can provide include: confidential support, information
and referral services, professional development workshops, monthly
newsletter, a large lending library, online support group forum
and links with other organizations. Asperger Services Australia
are located in Zillmere, Qld but can be contacted on: Office Phone:
(07) 3865 2911 Office Hours: 9:30 am till 3.00 pm or by appointment.
The offices and support groups are staffed by volunteers. Office
Email: office@asperger.asn.au |
Website: http://www.asperger.asn.au/Home.aspx
|
|
|
The
Qld Police Citizens Youth Welfare Association
is a welfare organization and works in conjunction with the Qld
Police Service. Sgt. Scott Pottle is currently managing the Cairns
PCYC. He has 17 years service in the Qld Police. The Cairns PCYC
is one of 46 branches of the Queensland Police-Citizens Youth Welfare
Association (view
their website here). The facility is housed
in a 1.5 million dollar building at Edge Hill. The Cairns PCYC now
provides many activities for persons of all ages. Through a local
initiative of the Cairns Autism Support Group (CASG), the PCYC now
runs a number of youth groups aimed at assisting school aged children
and adults with ASD. For further information contact PCYC Cairns
who can be found at: 91 McNamara Street, Manunda. Phone: (07) 4053
1532. Website: http://www.cairnspcyc.org/
|
|
Leisure
Options has been providing holidays for people with disabilities
since 1994. Small group holidays are their specialty. Larger group
holidays & camps have great activities and cater for active
or relaxed participants. Leisure Options have caring and fun staff
and travel companions. Leisure Options staff come from a variety
of backgrounds including Recreation, Physical Education, Tourism,
Nursing, Disability Studies and Teaching. Leisure Options is an
accredited tour operator & is a fully Licensed Travel Agency
specialising in holidays, tours and camps for people with disabilities.
They tailor programs to an individual’s skill level, needs
and interests. This includes: |
•
People with a mild intellectual and/or developmental disability;
• People with severe or multiple disabilities;
• People with physical disabilities
• People with intellectual and/or developmental disabilities
who are frail;
• People with an acquired brain injury;
• Older adults (frail aged);
• Children with a disability;
• Individual holidays and tours
|
Leisure Options,
are located in Victoria, however can be contacted at E-mail: mail@leisureoptions.com.au
Phone: 1300 363 713 or via their website at: http://www.leisureoptions.com.au/
|
|
ARC
Disability Services’ aim is ‘to support people who have
disabilities and their families, through a range of accommodating,
responsive and creative supports.’ This service aims to support
families living in the Far North Region which include a person who
has an intellectual and/or physical disability and/or sensory disability,
acquired prior to age 18, which results in a need for ongoing, lifelong
support, until age becomes the person's primary disability. Services
include: respite house, flexi respite, family support program, post
school services, and the popular ARC Toy Library.
ARC can be found at 92 Little Street, Manunda Post: PO Box 942N,
North Cairns Phone: (07) 4046 3600 Fax: (07) 4046 3699 Email: info@arcinc.org.au
Web: www.arcinc.org.au |
|
|
........................................................................................................................
1. 4 “What services are available in Cairns for those with
ASD?”
........................................................................................................................ |
CARERS,
PARENTS & GRANDPARENTS: |
- Cairns
Autism Support Group:
|
| The Cairns Autism Support Group (CASG) aim to provide the following: |
•
Access to information, support networks and events to all members.
• A sympathetic environment where issues can be shared and
aired without fear of criticism.
• A forum for visiting professionals of the group's choice,
to aid awareness, education and financial support to the group.
• A positive meeting point for carers and family members,
to exchange information and useful ideas, to promote friendships,
understanding and acceptance.
|
The
group holds regular coffee meetings, social events, gym playdates
for the kids and has an extensive library of books, dvds and other
resources for members to borrow.
Membership details can be found on the group’s website at:
www.casg.org.au
|
- Autism
Queensland - Online Support Group:
|
Family
Support Services moderates an online support group for the parents
and carers of those with an ASD. Anyone is welcome to join this
group. Go to: www.groups.google.com
When at the google groups home page, type into the search box –
’Autism Support Group Qld’. Anyone can read what is
posted on the discussion board, however, only group members can
make or respond to a post. To become a member, follow the instructions
on the site. For further information on the above services contact
the Family Support Team on 07 3273 0000 or email on fst2@autismqld.com.au Website:
http://www.autismqld.com.au/
|
|
The
purpose of Carers Queensland is to improve the lives of carers.
We provide important services like counselling, advice, advocacy,
education and training. We also promote the recognition of carers
to governments, businesses and the public. We provide information
and support to carers through: |
• The
Carer Advisory Service
• The National Carer Counselling Program
• Our Regional Office Network
• Carer Support Groups
• Education and Training
• Family Support and Advocacy
• Momentum: Back to Work Program for carers
• Carers Qld Library
• Young Carers Program
• Family Support Collective Project
|
|
- Commonwealth
Care and Respite Centre:
|
Blue
Care recognises the importance of providing a support network for
carers to access when they require a break. Blue Care manages five
Commonwealth Carer Respite Centres throughout Queensland: Cairns,
Townsville, Toowoomba, Robina and Ipswich.
The Commonwealth Carer Respite Centre works in partnership with
carers to provide: |
•
Information and advice about respite care and other support services
for carers
• Referral to appropriate local and regional service providers
• Funding for respite care in emergency or one off planned
care situations. For example if you become ill and unable provide
to care, or to allow you to attend a special event or family function
• A residential respite booking service
• Funding for respite for carers of people with challenging
behaviours
|
|
|
........................................................................................................................
2. “Is there a crisis helpline that I can call
in times of need?”
........................................................................................................................
|
- Cairns
Autism Support Group (CASG):
|
Cairns
Autism Support Group (CASG) offers support and advice to local families,
however, we are not able to provide a telephone counseling service.
We are run by parent volunteers and receive no financial support
of any kind. We can certainly provide advice via email, through
our website www.casg.org.au or
at our many social events that are run throughout the year.
|
|
Support and information
is available to families and carers of children with ASD and people
working with children with ASD supported by the outreach service over
the telephone or through written and e-mail enquiries. Where applicable,
written information may also be provided. There is no fee for this
service. Telephone: (07 3273 0000)
|
|
| Lifeline’s
13 11 14 service is staffed by trained volunteer telephone counsellors
who are ready to take calls 24-hour a day, any day of the week from
anywhere in Australia. Anyone can call Lifeline. Lifeline provides
a confidential service. Volunteer telephone counsellors will listen,
support and assist you to clarify for options and choices for yourself.
Counsellors may also provide you with information about community
services, or other Lifeline Services which you may find useful. Calls
to Lifeline are the cost of just a local call, however additional
charges may apply for calls from pay phones, mobiles or some home
phone plans. Telephone: (131144) |
|
........................................................................................................................
3. “What help is there for my child under Medicare?”
........................................................................................................................
|
The Department
of Health and Ageing (DoHA) has introduced
new Medicare items for children with ASDs.
These new items are for: |
•
Consultant physicians (pediatricians and psychiatrists) to diagnose
and develop a treatment plan for children under 13
on referral from a GP
• Psychologists, speech pathologists and occupational therapists
to provide up to four services in total per child to collaborate
with the psychiatrist or pediatrician on the assessment where
required
• Psychologists, speech pathologists and occupational therapists
to provide early intervention treatment following diagnosis
(providing up to 20 services in total per child).
|
Further
information on the Medicare items can be obtained by calling the
Department of Health and Ageing on (02) 6289 4297, or the Medicare
Australia Patient Enquiry Line on 13 20 11. |
|
| Current
at 01/01/2010 |